Dr. Reeves Removed from the CDC's CFS Research Program

    Dr. Reeves Former head of CDC's CFS research programIn a startling announcement on 3pm on Friday the CFIDS Association of America reported that the man who’d vowed to outlast everyone, Dr. Willam Reeves of the CDC, was out and that Dr. Elizabeth Unger was temporarily taking over controls of the CDC’s CFS Research program.

    Certainly, no one expected this. At the end of the recent ten year evaluation period the CDC had appeared to turn blind eye to all the complaints; neither the CFIDS Association documentation of a huge amount of waste in the program, or later the IACFS/ME’s or the CFSAC’s calls for fundamental change or the scathing public review session seemed to make any difference at all. In fact they didn’t even bother to respond; it all seemed like water off a ducks back at the CDC. The ten year evaluation process was presumably over last October with the publication of the official Five-Year Strategic Research Plan; except for a few changes around the edges it all looked very much like business as usual at the CDC is.

    Now we have to ask ourselves what happened? Is Dr. Reeves departure the final result of the evaluation period, or did something else happen, and if so what was it? Dr. Reeves has been associated with CFS at the CDC for almost 20 years and he has been the face of the program for ten. He gained notoriety when he blew the whistle on the diversion of CFS funds within the CDC in the late 1990’s. Because of that he’s been assumed, by some CFS patients at least, to be untouchable – but he wasn’t and now he’s gone. What happened?

    Getting rid of a division head is an extreme act implies that probably implies one of two things; either the party in question personally did something very wrong or the CDC brass believed he was leaving the program over a cliff.

    Let’s fervently hope that it was due to the second; if it was then their decision could have been caused by three things; -

    (1) the slow realization that he was not the man for the job;

    (2) a new administration that is shaking things up

    (3) the CDC’s abrupt and recent realization that his approach to the disease was no longer tenable.

    This first and second are understandable and warranted; the third would be truly exciting.

    The Accumulation of Things Scenario – It’s possible that the CFIDS Association’s findings of large amounts of wasted money and poor productivity in the program finally took root and that, in combination with the almost universal disregard for the program amongst CFS professionals, finally prompted CDC to say enough is enough. If this is so then Dr. Reeves promise to collaborate more and his quick refusal to do so certainly didn’t help him. Nor did his sometimes inopportune public statements. The failure of the Empirical Definition and the possibility of seven years of tainted or even irrelevant work, must have weighed heavily against him. In this scenario, however, Dr. Reeves inability to solve any of the basic questions regarding CFS (biomarkers, cause of the disease, treatment for it) is ultimately what ended his career in the disease.

    New Administration - Dr. Reeves has survived several changes of administration over the years but it may be that he finally met his match with this new one. The fact that the CDC itself is being reorganized in a rather massive way suggests that Dr. Reeves may not be the only department head to be given a lateral move near the end of his career. My thought was that the CFS program is so far down the totem pole that no one would care enough about it to change it but perhaps someone did.

    The New Direction Needed Scenario: The most exciting explanation is that the CDC is, based on its XMRV results, making a dramatic change in the direction of its program. This would fly contrary to the scuttlebutt that the CDC is not replicating the WPI’s findings but those are only rumors. What if the CDC is, (reportedly, working side by side with WPI), replicating their findings? (Dr. Mikovits one notes seemed nothing but enthusiastic about XMRV at the recent Prohealth presentation). Since Dr. Reeves talents don’t lie in retroviral investigation (not to mention the fact that the CDC would hardly want to retain a researcher who publicly trashed XMRV at the first opportunity) it would make sense to find someone else. Indeed, if XMRV is replicated one would expect wholesale changes in a program that hasn’t looked hard at a virus in chronic fatigue syndrome in about 10 years.

    Its hard to imagine that Dr. Reeves is happy with this move. He’s going from leading a program to being “Senior Advisor’ at a Mental Health surveillance program. From the sound of that his days as a lead researcher appear to be over. It sounds like a terrible comedown for him.

    Time will (hopefully) tell how this happened at the least expected of times.

    (Jeanne Spotila of the CFIDS Association reported in the Phoenix Rising forums that Dr. Unger is a virologist and cancer researcher who is not enamored of the sexual abuse studies the CDC has been focusing on.)
    Comments 35 Comments
    1. Lily's Avatar
      You're pretty quick, Cort! Love it!
    1. Carla-nl's Avatar
      ur fast ! i'll see if i can get a translation up today. Let's hope this is another major step for us

      EDIT: translations are coming in, for future easy reference, the full url: http://www.diagnosesupport.com/translations
      Feel free to copy/paste onto National platforms and forums !!

      Thanks to all who contribute, Carla
    1. cfids_searcher's Avatar
      Thanks, Cort, for the quick info! I have been looking since yesterday's announcement from Kim Cleary, and haven't found anything much until I read your post. Thank you!
    1. Cort's Avatar
      Check out this blog I did on the financial mismanagement uncovered by the CFIDS Association in the program

      http://blog.aboutmecfs.org/?p=600
    1. Hip's Avatar
      Apparently Dr. Elizabeth Unger is a pathologist, which is great.

      "The pathologist plays a key role in improving diagnoses through identifying new pathogenic bacteria, discovery of new infectious agents", it says on this web page (which also shows a picture of Dr. Unger).
    1. Hysterical Woman's Avatar
      Quote Originally Posted by Cort View Post
      Check out this blog I did on the financial mismanagement uncovered by the CFIDS Association in the program

      http://blog.aboutmecfs.org/?p=600
      Well done Cort!!!!!!!!!!
    1. Adam's Avatar
      What is it all the great fictional detectives say? What is the done to death cliche they all trot out?I don't believe in coincidence.You guys know the CDC CFS/ME inside out. Cort you are amazing. I'm so glad I found this site. Had my head in the sand for 10 yrs now after 3 yrs of testing finally left me with CFS (their label not mine) doagnosis.It is only because back in October my wife (looking at TV text on BBC) said, 'Oh seen this. Looks like they might have found a virus that causes CFS' that I am here on this site today.So now I know the names Reeves and Wesselly. I know Peterson and Mikovits. I know some really nice folk on Phoenix Rising too. and I think, I can see the wood even though there appear to be lots of trees in the way and I think there is no such thing as coincidence.
    1. thefreeprisoner's Avatar
      Hi Adam - great to have you here. I went to school in Wakefield for a while so I wasn't far from you I don't think.

      As my hubby often says: "When it comes to news, timing is everything." He keeps his eyes open for the time when they release certain news and that tells you a lot about the dark machinations behind it. Ever noticed how Israel decided to invade Lebanon at the same time as the Palestinian elections? That sort of thing...

      Rachel xx
    1. flybro's Avatar
      Excellent news.

      Everytime I see 'Reeves is Out', my smile gets broader.


      Just imagine, we may all have actual real beneficial help soon.

      Its like a prelude to winning the lottery.

      Cheers Cort
    1. Kelly's Avatar
      I'm sure that the information regarding Dr. Reeves transfer is correct, but has it been publicly verified by the CDC? The CFIDS Association is not considered an official source.
    1. Lily's Avatar
      Hmmmm..... from "division head" to Senior Advisor of Mental Health Surveillance. Didn't think he had any credentials related to mental health even though he seemed to act as though he knew something about mental health. So this almost seems like some sort of punishment to me - you know, since you know so much about mental health......or possibly it's merely a transition to retirement. Senior Advisor, Mental Health Surveillance sounds like less than a full time job to me. More like something you could pretend to do a couple of days a week
    1. usedtobeperkytina's Avatar
      My fear is that if he is advising on how to count how many people have mental disorders, what would we expect those numbers to look like after he is involved? How many other disorders will he now count as mental? Tina
    1. Revday's Avatar
      Quote Originally Posted by Lily View Post
      Hmmmm..... from "division head" to Senior Advisor of Mental Health Surveillance. Didn't think he had any credentials related to mental health even though he seemed to act as though he knew something about mental health. So this almost seems like some sort of punishment to me - you know, since you know so much about mental health......or possibly it's merely a transition to retirement. Senior Advisor, Mental Health Surveillance sounds like less than a full time job to me. More like something you could pretend to do a couple of days a week
      It seems I read somewhere (Disclaimer: I have increasing short term memory loss) Dr. Reeves studied for 3/4 of the program at the Emory University's Psychiatric department. Something about a Dr. with a little knowledge is a...! http://forums.aboutmecfs.org/images/...20rolleyes.gif Considering the multiple Psychiatrists from Emory I taught about Alcoholism/ Addiction http://forums.aboutmecfs.org/images/...20confused.gif and 22 years of working with and around them Reeves focus is ultimately understandable but necessarily flawed.

      I love thesehttp://forums.aboutmecfs.org/images/smilies/newSmilies/Retro%20wink.gif
      Thanx Cort
    1. Martin's Avatar
      Quote Originally Posted by Kelly View Post
      I'm sure that the information regarding Dr. Reeves transfer is correct, but has it been publicly verified by the CDC? The CFIDS Association is not considered an official source.
      Great news! But my concern is the same - is it verified? Where can the official information be found?
      Thanks.
    1. Rrrr's Avatar
      when i do a search on the cdc website for Dr. Unger i see she has been involved with cfs for about 10 years, attending cfs meetings and such. i did not research it further. (i just typed in dr unger into the CDC search engine)
    1. Rrrr's Avatar
      here is her email address: eunger@cdc.gov maybe if we send her a flood of emails welcoming her, it will let her know that there are many of us counting on her. rrrr
    1. Rrrr's Avatar
      i just sent her this.... To: eunger@cdc.gov Subject: Welcome Dear Dr. Unger, It is with great pleasure that the people living with Chronic Fatigue Syndrome welcome you to your new position at the CDC. As I write this, few thousand of us from around the country are discussing your new appointment with intense interest and excitement. We are very eager to see movement forward on the CFS front. People, like me, have been sick for decades. We had full careers when we got struck with our illnesses, forcing us to live in or near our beds. And we have had to endure all sorts of hardships, not the least of which has been feeling like our government was ignoring us or psychologizing us. Twenty years and no biomarker, no treatment, no cure, no vaccine. We hope all this will change with your appointment! We welcome you and want you to know that there are millions of us across the country hoping for your success in your new position. Warmly, xxxx address
    1. txfriend's Avatar
      Quote Originally Posted by Rrrr View Post
      i just sent her this.... To: eunger@cdc.gov Subject: Welcome Dear Dr. Unger, It is with great pleasure that the people living with Chronic Fatigue Syndrome welcome you to your new position at the CDC. As I write this, few thousand of us from around the country are discussing your new appointment with intense interest and excitement. We are very eager to see movement forward on the CFS front. People, like me, have been sick for decades. We had full careers when we got struck with our illnesses, forcing us to live in or near our beds. And we have had to endure all sorts of hardships, not the least of which has been feeling like our government was ignoring us or psychologizing us. Twenty years and no biomarker, no treatment, no cure, no vaccine. We hope all this will change with your appointment! We welcome you and want you to know that there are millions of us across the country hoping for your success in your new position. Warmly, xxxx address
      The CFS thread has begun at cdcchatter.net. Note: if you go to the old one, it was deleted because of negative attacks on persons of interest. The thread is under the 'reorganization' area. If you respond, please, let's keep it civil and don't celebrate too much on that site, or we'll be kicked off again!
    1. anne's Avatar
      Cort, can you change these pictures of Reeves splashed on the front page to, like, bunnies or something?
    1. Quilp's Avatar
      I agree Anne; everytime i look at his photo i feel as though i owe him some money.