Chronic Fatigue Syndrome Forums (ME/CFS Forums) at the PHOENIX RISING - Powered by vBulletin
  • Register
  • Help

  • Home
    • Chronic Fatigue Syndrome (ME/CFS) News
  • Forum
  • Wiki
  • Chat Room
  • Blogs
  • What's New?
  • Shop
  • Donate
  • Website
  • Advanced Search
  • Home
  • Home
  • Chronic Fatigue Syndrome (ME/CFS) News

  1. If this is your first visit, be sure to check out the FAQ by clicking the link above. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below.

    Chronic Fatigue Syndrome (ME/CFS) News RSS Feed

    "Evil Eye" PR Forum Member's Novel Debuts 

    by
    Cort
    • View Profile
    • View Forum Posts
    • Private Message
    • View Blog Entries
    • Visit Homepage
    • View Articles
    Published on July 25th, 2010 02:07 PM
    Article Preview

    Veronica Di Grigoli's (Athene on the Forums) first novel, 'Evil Eye', just debuted on Amazon.com in the US after getting excellent reviews in the UK. Part detective story, part character study - think Amy Tan and Jane Austin looking for clues to a child's mysterious disappearance in Istanbul - it looks like an intriguing take on the fascinating part of the world. Anyone with ME/CFS who publishes a book is a cause for celebration. I asked Veronica about CFS and her novel. ...
    Read More Read More 16 Comments

    Who's In and Who's Out at the International XMRV Workshop? 

    by
    Cort
    • View Profile
    • View Forum Posts
    • Private Message
    • View Blog Entries
    • Visit Homepage
    • View Articles
    Published on July 23rd, 2010 02:58 PM
    Article Preview

    International XMRV Workshop Lineup - Conference and Workshop lineups can tell you alot about who's in and who's out. I remember a CDC lecture at the Reno CFS conference; it was a nothing lecture but there it was in prime time. Why? Probably because the CDC had to be given some space. Why is Dr. Komarof always given the end address at the IACFS/ME International ME/CFS Conferences? Is it because he's so brilliant or because he gives such a great presentation? He does give a great presentation but I suspect that one reason he's always given such a prominent position is that he is a middle of the road, respectable researcher who just happens to hail from Harvard. He gives a good gloss to the proceedings. ...
    Read More Read More 71 Comments

    A Different Kind of XMRV? Dr. Mikovits and Dr. Racaniello on XMRV by Cort Johnson 

    by
    Cort
    • View Profile
    • View Forum Posts
    • Private Message
    • View Blog Entries
    • Visit Homepage
    • View Articles
    Published on July 11th, 2010 05:39 PM
    Article Preview

    Prelude: XMRV’s status seems more up in the air than ever. Yes, a number of negative studies have been published but every study has had its problems. With the Alter paper unpublished and questions about the CDC study arising just as quickly as it was published, the only thing that seems to be clear, amazingly enough, after almost nine months, is that there is still no consensus on XMRV. ...
    Read More Read More 46 Comments

    How to Make Money While Sick in Bed 

    by
    Carrigon
    • View Profile
    • View Forum Posts
    • Private Message
    • View Blog Entries
    • View Articles
    Published on July 19th, 2010 04:10 PM
    Article Preview

    I finally found a few things that are working for me. And this is after looking for a very long time. You won’t get rich off it, but it can be built up to a week’s grocery money. It really just depends on how determined you are, how much time and effort you put into it. I started to investigate the paid survey sites. For years, I heard tales of people making anywhere from ninety to a few hundred dollars a month off the surveys. I always thought it was bull. But a net friend told me his wife was doing it, and then I met a few others who really are making good money off it. But it was a matter of knowing where to go to do it. ...
    Read More Read More 5 Comments

    Magic wand anyone? 

    by
    The Spitfire
    • View Profile
    • View Forum Posts
    • Private Message
    • View Blog Entries
    • View Articles
    Published on July 19th, 2010 04:17 PM
    Article Preview

    I needed somewhere to come and vent about this. I am doing better, due to the shots, but I have had a set back due to my period. My period is the albatross around my neck always. It takes me from 60 to 5. I am really sad today and need somewhere to come and let it out. I just watched the movie on Coco Chanel. I feel so inspired and so sad all in one. I always had the dream of becoming so successful and really being awesome at whatever I did. I cared more about that then a man or marriage. I have always wanted to love what I do as far as a job is concerned. I have found that in my job. ...
    Read More Read More 21 Comments

    CFIDS Association Webinar: Dr. Racaniello and Dr. Bateman on XMRV 

    by
    Cort
    • View Profile
    • View Forum Posts
    • Private Message
    • View Blog Entries
    • Visit Homepage
    • View Articles
    Published on July 16th, 2010 05:10 PM
    Article Preview

    Dr. Racaniello and Dr. Bateman talked XMRV (mostly) at the CFID'S Association Webinar on Wednesday. DR. RACANIELLO gave us a bird's eye of retroviruses. Right now there are two models for human infectious retroviruses; HIV, which replicates madly in immune cells and sends millions of virions into the blood to infect more cells and HTLV-1, which does not replicate much and does it's damage by turning on bad genes in the cells it is found in (sometimes turning them cancerous). ...
    Read More Read More 19 Comments

    Tests Confirm It - Ampligen Works! 

    by
    Kelvin Lord
    • View Profile
    • View Forum Posts
    • Private Message
    • View Blog Entries
    • Visit Homepage
    • View Articles
    Published on July 13th, 2010 12:30 PM
    Article Preview

    I have waited 6 full months to be able to say this, and the day has finally arrived. So here it is: I know without a shadow of a doubt that Ampligen works. As I finish my 24th week of Ampligen, I can say with confidence that this amazing drug has performed "as advertised," and then some. I know this not only because of the numerous physical and mental tests I take at the clinic that tracks my progress and improvement, but most importantly for me, I know Ampligen is working because of my own, secret test. Let me explain. ...
    Read More Read More 9 Comments

    Sections Sections

    • Donate
    • XMRV
    • Treatment
    • Shop For Phoenix Rising
    • Recovery/Recovering
    • Research
    • Advocacy
    • Stories
    • CDC

    Phoenix Rising Links

    • XMRV Buzz
    • Main Website
    • Treatment Pages
    • Bringing the Heat Blog

    Recent XMRV Posts

    XMRV and Thyroid Cancer?

    Thread Starter: Impish

    Today 07:58 AM by Bob Go to last post

    WPI UK XMRV testing/study

    Thread Starter: JAS

    Today 07:52 AM by Diva55 Go to last post

    Suspense. Any news on WHEN the NIH/FDA study might come out?

    Thread Starter: FernRhizome

    Today 04:55 AM by judderwocky Go to last post

    Blood Products Advisory Committee Meeting Background Material

    Thread Starter: ixchelkali

    Today 03:00 AM by George Go to last post

    Quiet Dynamite: XMRV as an Infectious Agent

    Thread Starter: akrasia

    Today 02:19 AM by George Go to last post

    Online Events

    Sign the XMRV Petition to Allow Publication of all XMRV Papers

    CFIDS BioBank Now Open to Everyone With CFS! - Healthy controls needed as well.

    Email biobank@cfids.org or call 704-362-2343 to get started

    Recent Blogs

    The Spitfire Gazette!

    The Spitfire July 28th, 2010  

    GcMAF trial

    moonwalker July 27th, 2010  

    'Evil Eye'- PR Forum Member's Novel Debuts

    Cort July 26th, 2010  

    How do we react to the recent events?

    aruschima July 25th, 2010  

    Under Pain Medicated Mini Rant

    Carrigon July 24th, 2010  

    A brief sad history of ME/CFS

    jace July 24th, 2010  

    Brief Update

    Lisa July 24th, 2010  

    My New Blog Place

    Carrigon July 24th, 2010  

    Random Flare Ups

    Carrigon July 23rd, 2010  

    Focus

    Liz July 22nd, 2010  

    Kicked by Horse

    taniaaust1 July 21st, 2010  

    (xmrv) – blood products advisory committee meeting

    aruschima July 20th, 2010  
  • Contact Us
  • Phoenix Rising: Making A Difference in ME/CFS
  • Archive
  • Top
All times are GMT -4. The time now is 08:17 AM.
Powered by vBulletin™ Version 4.0.2
Copyright © 2010 vBulletin Solutions, Inc. All rights reserved.
Extra Tabs by vBulletin Hispano