20 patients now found positive for CCI / AAI, there must be many more...

debored13

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I looked at the original email from bolognese and he mentioned that there can be a rebound effect from traction. My initial response seems to be indicative of cci, but I had a session yesterday where I didn’t get any relief besides a mild relief and I also experienced a lot of discomfort Bc my neck muscles are now so weak that they tend to spasm or tense up sometimes. So it was like I was guarding during traction and it actually tired me out even tho it was a very simple thing.

The other thing sort of complicating my responses to it is that I’ve had my sister give me very rough and untrained traction and sometimes it really helps?? I think it depends what my symptoms are prior to the traction. I’ve had my vertigo go away from my sister doing traction sometimes but it doesn’t seem to help really dramatically with fatigue. I am almost uncomfortable with the ambiguity of my responses, because I am considering surgery since my quality of life is so low but I would think traction would be a test of how I respond to surgery. Perhaps it depends a lot on how my muscles are relaxed etc.

My physical therapist filled out a form to try and get this inflatable traction device covered by insurance. He thinks this is a better idea than over the door traction and says that some of these devices can be quite strong and even go up to 50 pounds. He agrees with me that it may allow me to have a better evaluation of my response to traction since I can do it more often and personalize the session.
 

debored13

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I am starting to be really concerned about this as a lot of my symptoms especially when I worsened in December were sort of classic to cci, I had a dramatic worsening that I can’t account for any other way. I had new symptoms of neck weakness answer positional vertigo and my pots went so much more crazy. I also had new sound sensitivity and light sensitivity. I had relief in a collar to an extent —mostly from my vertigo moreso than pots. I have been using a collar so l no longer know if my relief is due to deconditioning from the collar, although while that would explain my neck weakness and pain while not in collar, I don’t know if it would explain how the collar relieves my neurological symptoms.
 

StarChild56

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@debored13 - I am really sorry you are having worse symptoms. I wish I had something to offer other than wishes for you to feel better and get good answers. Hope the inflatable traction is approved. My PT said what she likes about laying down having traction is that you can relax all your other muscles vs. when sitting up for over the door traction, you can not.
 

gbells

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I think the CCI could be due to a slow viral infection process in the ligaments supporting the bones. Over time they become weak and allow the increased movement.
 

valentinelynx

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I was actually just reading my MRI results from Start of 2017.

I don't really quite understand it, but I have mild disc protrusion, which results in mild central canal stenosis, but no foraminal stenosis. The comments were: I don't even know if this is at all relevant to the posting?

My GP explained what I have is just disc wearing and it happens as we age. Is that correct? Do I need to investigate my results further?
Your MRI results are not very unusual, your GP is correct. When looking at a MRI, one has to take into account a patient's symptoms. The strange thing is that one can have a grossly abnormal MRI without symptoms, and vice versa.

Also, this standard kind of cervical MRI (supine and without flexion/extension views) is apparently not very useful in assessing for CCI/AAI. Unless you have severe obvious Chiari malformation, you need an upright MRI and views with your head back (extension) and forward (flexion) to show the abnormality.

Here's a pretty good article on the symptoms of cervical spine stenosis and cervical nerve root stenosis.
 
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I have had traditional MRI but nothing else.
If anyone who lives in northern California and knows of anyone I could see that would test for this I would greatly appreciate it!!!!! thanks so much.
@humanrising I just spoke with Bolognese who accepts insurance & does Skype consults. When asked what imaging he required he said 1.5 Tesla or higher supine MRI w/out contrast. (as of March 10, 2019) No special views required. So you may very well already have that imaging & would simply need to fill out the online paperwork & send in your scans.